* Uncategorised

On December 15, 2017 the MSS Research Foundation existed exactly 10 years. We are extremely grateful that the foundation has been able to do so much for children and adults with MSS and their families over the past 10 years. We celebrated this with a…

The Marshall-Smith syndrome (MSS) is a very infrequently described syndrome. The syndrome has been described for the first time in 1971. Since then, about 50 children and adults with the syndrome are known in the medical literature worldwide. The syndrome…

MSS families worldwide join together to fight for the same purpose: to give their child with the Marshall-Smith syndrome (MSS) a better life. MSS is a rare and serious syndrome. Many MSS children die in early childhood from severe respiratory problems. They…

Dear family, My name is Linda Leclair, I’m a wedding & event planner from Holland and on behalf of the board of the MSS research foundation I am very happy to announce the new edition of the MSS Family event on 6-7-8-9 October 2017. Just like in 2015 the…

{chronoforms5}vriendvanmss{/chronoforms5}

We hope your donation via iDEAL has succeeded. We would like to sincerely thank you for your donation. YOu wil receive a confirmation fo your donation to the MSS Research Foundation via the bank of your choice. We would like to keep you informed about the…

MSS Research Foundation Oeverbiesstraat 20 NL-2548WP   The Hague The Netherlands Tel. +31 70 33 56956   On December 15, 2007 the MSS (Marshall-Smith Syndrome) Research Foundation was incorporated in The Netherlands. The goal is to finance…